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Catholic schools struggle to accommodate disabilities

Twins Lauren, left, and Katie Winbinger attend Nativity of Mary Catholic School near Kansas City. RNS photo by Heather Adams

KANSAS CITY, Mo. (RNS) — After students at the public school started bullying the Winbinger twins, who have cerebral palsy, the girls’ parents knew it was time to pull them out.

For Matt and Becky Winbinger, the obvious alternative was to look to the Catholic school system.

“In a Catholic school it’s true inclusion. Everybody is treated the same way,” Becky Winbinger said. “It’s not like that at a public school.”

But this type of inclusion — the integration of students with special needs into the regular classroom — is new to many Catholic schools.

In Kansas City, where the Winbingers live, the practice of inclusion has flourished in Catholic schools. But in much of the rest of the country, simply including children with disabilities in Catholic schools can be a long and difficult road for parents.

According to the National Catholic Educational Association, the number of students with disabilities in Catholic schools across the country has increased by almost 20,000 over the past three years. (The association began tracking the number of students with disabilities in 2015.)  

But because disability practices aren’t uniform across Catholic schools, families wanting a Catholic education for their disabled children often encounter tough choices.

When Vincenza Spadafore was born with a rare genetic condition known as PURA syndrome, her parents, Christy and Dominic, faced a dilemma. The Catholic school their boys attended in Tulsa, Okla., was built in 1928, with lots of stairs and no elevator. The Spadafores knew it wouldn’t be suitable for their daughter.

It wasn’t that the school didn’t want to help Vincenza, Christy Spadafore said, but there was no cost-effective way to do it.

That’s when they found the FIRE Foundation.

FIRE, which stands for Foundation for Inclusive Religious Education, was started in 1996 in Kansas City, Mo., after a group of parents were “heartbroken” they weren’t able to give their children with disabilities a Catholic education. They’ve since provided more than $4.8 million for inclusive Catholic education, investing $400,000 this past year, buying iPads, providing training and hiring special education teachers.

High school students who benefit from FIRE greet golfers at the foundation’s annual golf tournament “Play with FIRE” in spring 2018 in Kansas City. Pete Whittaker, center, with peer mentors Nate Schwaller, left, and John Hyde all attend St. Michael the Archangel Catholic High School near Kansas City. Photo courtesy of FIRE Foundation

The Spadafores began talking to the nonprofit in fall 2017. Soon they had a list of possible places to move.

“We looked at these places in perspective of what happens to our 21-year-old daughter or when she’s 30, or when she’s of an age where we cannot physically take care of her?” Dominic Spadafore said. “What are the options for her?”

Plus, the Spadafores had their two boys and their own careers to worry about.

Ultimately, Kansas City had the support Vincenza, who is 5 now, needed for schooling, plus some of her specialists were already located there. It also allowed all three children to attend the same Catholic school.

“In a lot of ways, getting her ready for school has been some of the easier part of this relocation,” he added.

But even for those already in Kansas City, it doesn’t come without cost.

One of the biggest problems with serving students with disabilities in Catholic school is the lack of resources. The most common option is to partner with the child’s public school to receive certain therapy services.

For the Winbinger twins, Katie and Lauren, Nativity of Mary Catholic School wasn’t able to provide any of the therapies needed. So, the Winbingers decided to do without physical and occupational therapy.

For a while, Becky Winbinger drove the twins to speech therapy and then back to their Catholic school, where they would have to make up the lessons they missed.

Ultimately, they dropped speech therapy, too.

It’s decisions like this that FIRE is working to end.

The nonprofit is working on starting pilot programs to address therapy needs within the Catholic school.

Lynn Hire. Photo courtesy of Fire Foundation

“It’s all about bringing the resources into the learning environment that are going to help that kiddo succeed,” said Lynn Hire, executive director of the FIRE Foundation.

Hire said she gets phone calls every week from parents all over the United States not sure how to get their Catholic school to accept their child with disabilities.

Once school administrators are presented with the facts about how important inclusion can be, most are willing to accommodate children with disabilities, she said.

FIRE has set up peer-to-peer programs so principals or teachers can talk to experts working with FIRE.

“Inclusion changes the heart of the school,” Hire said. “People are kinder. People are more patient. People are less judgmental. It’s kind of a powerful thing.”

FIRE now works with affiliates in northeast Iowa, central Illinois and New Hampshire. Another group, in St. Louis, recently modeled its program after FIRE’s.

For some, it’s the long and tiresome road of not being able to get their children with disabilities a Catholic education that drives them to push for inclusion years later.

Francesca Pellegrino founded the Catholic Coalition for Special Education in the Washington, D.C., area after she wasn’t able to get her son, now 26, a Catholic education.

“He was being served in the public schools,” she said. “But in the public school you can’t talk about Easter, you can’t talk about Christmas. It really didn’t feel complete.”

Francesca Pellegrino. (U.S. Air Force photo by Senior Airman Preston Webb)

She had already started her parish’s disability ministry after she found many other parents had the same questions she did.

She found a few schools that were willing to take in students with disabilities but they were often small programs that weren’t able to accommodate students outside their parish. It always seemed to come down to money and resources.

CCSE has since awarded schools about 60 grants totaling nearly $1 million. It has worked with nearly 30 schools in Maryland, helping about 6,000 students, teachers and families.

Its professional development program, called Believe in Me, is the most recent addition to its support services. The organization is using it as a way for more Catholic schools to get informed and start thinking about best ways to serve students with disabilities and to continue informing schools that have received CCSE grants in the past. On Monday (Aug. 27), more than 70 teachers and administrators attended.

“In many cases, the technical assistance CCSE provides is a precursor to a CCSE grant,” said Pellegrino, in a press release.

Although CCSE mostly provides services in the Baltimore and Washington, D.C., region, the organization receives numerous phone calls from all over the country. In December 2017, CCSE published “Including Students with Developmental Disabilities in Catholic Schools – Guiding Principles for Administrators and Teachers,” to help address questions for anyone, not just those in its service area. The publication goes over topics such as the importance of maintaining high expectations and making use of evidence-based practices.

Pellegrino dreams of the day inclusion in Catholic schools is available everywhere and students with disabilities can go on to Catholic colleges, too.

She knows the dream might feel distant, but she’s always been a fighter.

Her son now works in a supermarket three days a week and is a teaching assistant at St. Peter School on Capitol Hill.

“Even though he didn’t get to go to Catholic school as a student, he still managed to get into Catholic school in his own way,” Pellegrino said.

Tom Racunas. Photo courtesy of Archdiocese of Kansas City in Kansas

Tom Racunas, lead consultant for Special Needs Ministry at the Archdiocese of Kansas City in Kansas, believes the push for inclusion in Catholic schools and in public schools is forcing the Catholic Church as a whole to be more inclusive.

Typically, he said, a position like his only exists in larger archdioceses.

“There has been an unfortunate history of people with disabilities being left outside the doors,” Racunas said.

In 1978, U.S. bishops wrote a pastoral statement about the inclusion of people with disabilities.

But a recent study found that a child with autism was twice as likely as one with no chronic health conditions to stay home from church.

“Pope Francis is saying, ‘Reach out into the peripheries,’” Racunas said. “Well, sometimes we don’t have to look any further than our own parish.”

The Diocese of Kansas City-St. Joseph’s Nativity of Mary in Independence, Mo., welcomed the Winbinger twins but there, too, they were bullied. This time the school addressed the problem and within a month the girls had their first-ever sleepover.

And the girls, now 11, have succeeded in more ways than Becky Winbinger could have imagined.

“These were girls that weren’t even supposed to walk,” she said.

Last year, Katie ran her first track meet.

About the author

Heather Adams

22 Comments

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  • Special education is very expensive, requires experienced and dedicated teachers to fit the tailored needs depending upon the challenges each child has. It is commendable that a private school would take these cases on.

    With the public schools, the parents must be stronger advocates if they have a disabled child. Parents may need to take legal action to make the public schools do the job that the school is;legally obligated by Federal and state laws. Most school systems stumble about with children who require special needs because the school lacks the trained personnel for the specific disability or is too concerned about money. The family should have found a discrimination lawyer even just for advice. Often Legal Aid if it is a disability related discrimination issue may help for free from advice, to writing a nasty letter or further steps with the public schools.

  • What did St. Joseph’s Nativity of Mary school do to “address the problem” of the Winbinger twins being bullied? And why do we not demand that whatever that was be Job #1 in our public schools? We should be concerned that people are out purchasing or enduring doctrine which is not necessary for education in order to find a refuge from incivility in PS children.

  • One more reason why monies, including funds to support disabilities, should be made available to private schools.

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    THEY WOULD OF STOPPED ME AS WASHINGTON BUT I AM PROTECTED SPIRITUALLY THEY
    CANNOT COME NEAR ME. DC MIDDLE EAST ALL
    POLITICIANS WANTED ARABS PALESTINE NOT JEWISH ISRAEL
    URGENT: MY NAME IS DONNA
    I WENT TO ALL THE SHULS AND JEWISH NEIGHBORHOODS IN 2008 TO RESEARCH WHAT IS
    GOING ON I WAS TOLD TOO. I MET ABE WEISS SHOWING A PROPERTY. THEN I STARTED
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    TO HELP ME SO I DID IT MYSELF. HE IS IN MONSEY AND HAS FAMILY IN ISRAEL. I
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    ISRAEL. I HAVE BEEN SABOTAGED CHEATED BY ISRAEL AND WASHINGTON SO NOBODY WOULD
    KNOW ME ON THE COMPUTER WHERE MY WORK INSTRUCTIONS FOR THE JEWS AND JEWISH NEWS.
    I MASTERMINDED FOR THE JEWS TO OWN ISRAEL. ALL I DID FOR THE JEWS OVER 10 YEARS
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  • Another reason for school choice. Parents of kids with disabilities have no choice but to send their kids to a public school to get certain therapy services. Sometimes the schools are good; often not so much. Too often the public schools become overwhelmed with the amount of special need kids sent to them. Better for all involved if non public schools can pitch in.

  • Sending disabled kids to a school regulated by a disabled, discredited organization – the RCC, with it’s ranks filled from pope to priest with the most inhuman, debased sociopathic dregs of creation, can only happen with a parent who is totally out of touch with reality.

    Catholic schools are prisons, where children are sent to do penance for the sins of the parent.

    If children are normal upon entering a Catholic school – they will be disabled when they leave – certainly psychologically, very possibly physically.

    ” Tens of thousands of Irish children were sexually, physically and emotionally abused by nuns, priests and others over 60 years in a
    network of church-run residential schools….”

    ” In a litany that sounds as if it comes from the records of a P.O.W. camp, the report chronicles some of the forms of physical abuse suffered in the boys’ schools:

    “Punching, flogging, assault and bodily attacks, hitting with the hand, kicking, ear pulling, hair pulling, head shaving, beating on the soles of the feet, burning, scalding, stabbing, severe beatings with or without clothes, being made to kneel and stand in fixed positions for lengthy
    periods, made to sleep outside overnight, being forced into cold or excessively hot baths and showers, hosed down with cold water before
    being beaten, beaten while hanging from hooks on the wall, being set upon by dogs, being restrained in order to be beaten, physical assaults by more than one person, and having objects thrown at them.”

    ” Girls were routinely sexually abused, often by more than one person at a time, the report said, in “dormitories, schools, motor vehicles, bathrooms, staff bedrooms, churches, sacristies, fields, parlors, the residences of clergy….”

    https://www.nytimes.com/2009/05/21/world/europe/21ireland.html

  • There is no mandate for these “choice” schools to accept any student with any disability. They can be refused admission sight unseen. Meanwhile the public tax dollars that walked into that “choice” school depleted the budget of the public school staffed to meet the basic requirements of a mainstreamed disabled child. These for profit entities bankrolling K-12 enterprises are focused on a return on investment not specific needs for the disabled. There is no profit in that. These entities are not known for their altruism regardless their glitzy recruiting brochures. The public tax dollars that follow students to “choice” schools are one way for the most part. When there is a failure there is very little to no legal recourse for the parent and the district. Boiler plate corporate legalese protects the investor before the recipient. Kind of backwards in my opinion. Just follow the money trail. I’ve done that for Texas, Florida, Ohio, Michigan, Tennessee… I watched “magnate schools” in Florida fleece communities back in the day.
    School choice may be a good concept but until consumer protection is factored into the business model too many students and families will lose. The ones that are succeeding are the exception, not the rule.

  • If the church did not have to pay out billions to victims of clerical sexual abuse and coverups it might be able to better afford service kids in uts private schools, many of which already benefit from dollars squeezed fro taxpayers. Let’s note also that Catholic schools have declined in enrollment from 5.5 million in 1965 to 2 million today, due to “changing parental preferences.”

  • Yes, some our public schools could be improved, but first they need to be more adequately funded and public fuds should not be diverted to private schools not under public control.

  • It is always good to hear you share the anti-Catholic perspective and the zany end of the political spectrum.

  • The public schools are well-reimbursed for meeting the requirements.

    As the article demonstrates, they are not exceptionally successful, however.

    As the article also demonstrates, these schools are not fleecing anyone.

  • I agree with that, of course, but basically we have people often wanting out of the public schools to get their own children away from other people’s children who cannot be controlled. This bullying business has a lot to do with the disdain for public schools which is resulting in public schools losing the political battle. Let me say again that I AGREE WITH YOU. Let me also point out that the wind is blowing the other direction for the time being, maybe permanently. There is no chance in our current politics that public schools are given more money by wall to wall Republicans. There is every chance that they will be derided for a generation. I don’t like it. But you are reading an article here about a pair of challenged twins who could not survive the PS experience. Why is that?

    Is there any country in the world with less of a bullying problem in their public schools. If so, do we know that they are doing that we are not?

  • Good points. Yes, some people shift their kids from public to private schools, which can exclude “problem” kids that public schools can’t. Nut in the last 10 years 35 states have cut per student spending by an average of 7% while diverting more $ to selective private schools. The just released PDK poll shows that 70% of respondents give an A or B grade to the public school attended by their oldest child, while only 19% give an A or B to schools nationally, which shows that most Americans have been suckered into accepting the vicious propaganda spewed by the advocates of tax aid to private schools. It’s a mess, and the answer is to elect more Dems to state legislatures and Congress, and to fight back against Trump, Pence, DeVos and the GOP.

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